Category Archives: Social communication

Mapping sensory-friendly networks

Community outreach, Disablement, Sensory issues, Social communication

Cover image: “We are Cork” at City Hall, surrounded by sensory peaks of vision, music, flavour, aroma and texture.

In 2024 a group of us, all autistic adults connected through the Aspect support service in Cork and Kerry, came together to design, conduct and report on our experiences of urban space. This concluded with our illustrated report “The Sensory City, Cork“.

During the course of our collaboration we had some focus group sessions and group walks through parts of Cork City to iteratively design and test a survey for a wider group of Aspect clients in Cork and Kerry. The survey was completed by 76 people, who were all invited to contribute, in words and pictures, to a set of conclusions and recommendations from the survey of our collective autistic experience of urban space.

The Aspect service, part of the Rehab Group, kindly provided meeting space and supported our communication and survey dissemination process.

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Venice Architectural Biennale, 2021

Disablement, Sensory issues, Social communication
Pandemic Birds – a video composite of jackdaws flying over Cork City at sunrise, from my window at home during lockdown.

Some of my work on perceptions of public space features in the exhibition “Autistic Imaginaries of Architectural Space: The World from an Autistic Lens” curated by architect Magda Mostafa, who co-developed the Autism Friendly University Design Guide with Dublin City University.

You can visit a static gallery of my own contribution or visit a virtual tour of “Time Space Existence” at the Palazzon Bembo, created by the European Centre for Culture.

I am more proud of this collection of work than of anything else I have done. This is a good time for me to reflect on my needs as an autistic (city-dwelling) adult, and on the amazing support I have had over the past (more than) decade from Aspect, the support service for autistic adults in Cork & Kerry.

Visit here: stuartneilson.com/Exhibitions/Venice%202021/

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Car-free Cork in 15 minutes, walking and cycling

Community outreach, Disablement, Sensory issues, Social communication
Cork City centre is within 15 minutes walk (green) for 22,000 residents, within 30 minutes walk (cyan) for 53,000 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,000 residents.

Cork City centre is compact, varied and contains all the amenities for most people’s everyday needs. The City centre shops and facilities are within 15 minutes walk (green) for 22,530 residents, within 30 minutes walk (cyan) for 53,481 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,200 residents.

These residents are, equally, the consumer base of many of the businesses within Cork City centre, and the audience for appeals on footfall and invigorating activity in Cork.

I use the boundaries of Cork City, as defined at the time of the 2016 census, to count and plot how many can (and do!) walk, cycle, use public transport and live without cars or private motorised vehicles in Cork City. Links to the full CSO Small Area Population Statistics (SAPS) are included (and repeated in full at the end), as well as some excellent sources of information about the City, including the Pedestrian Cork Survey 2020.

(See also “Conserving accesible urban space” for a discussion on accessibility and sensory overload in Cork City).

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“My Autistic Fight Song” by Rosie Weldon

Book, Sensory issues, Social communication

Rosie Weldon received an autism diagnosis at 25, by no means either the beginning or end of her journey of self-discovery and world shaping. In her memoir, “My Autistic Fight Song”, she presents a raw, intense and very positive view into family, education, love and work from her autistic perspective.

“My Autistic Fight Song” by Rosie Weldon is available in print or ebook form from 1 April 2020.

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How I (sometimes) cope with anxiety

Interventions, Social communication

Ian Dury wryly noted that anxiety crippled (his word) him more than polio and in his wonderful song “Crippled with Nerves”, anxiety is both disabling and a potential loss of social opportunity – but it’s a pain worth enduring for a sufficiently rewarding end result (marriage and two children, in his case). I’d like to emphasise the role of choice and (social) reward.

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Conserving accesible urban space

Disablement, Sensory issues, Social communication, Statistics

Urban space is changing fast and despite the potential to increase urban space through growth, technology and social progress, the reality is often increasing exclusion and isolation. My own experience is one of a city increasingly paved over, squared off, noisier and lacking in calm spaces. Traffic, busy people and blank commercial facades have replaced more welcoming districts, because accessibility and family-friendly features are not a developer priority – they maximise borrowings, ramp up local property prices, take the increase in plot value and move on. Sustainable community is not a short-term money-spinner.

My perspective is very much the social exclusion and sensory impact of unsympathetic development. This post includes some images of Cork City and data maps of changing city demographics, at the level of the 74 electoral districts, to outline how the city is changing.

Further reading:

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Sensory Issues and Social Inclusion

Book, Disablement, Sensory issues, Social communication

This is the full text of my chapter on sensory issues in public spaces, in the anthology “Knowing Why: Adult-Diagnosed Autistic People on Life and Autism”. The anthology presents contributions from a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.

You can purchase the book (and support the work of the Autistic Self Advocacy Network, ASAN) from Amazon, Barnes & Noble or Books-A-Million.

The book contents are: Emerging From Burnout – Erin Human; Being the Dictionary: On Passions, Diagnosis, and Integration – A.J. Odasso; Sensory Issues and Social Inclusion – Stuart Neilson; Working While Autistic – Kelly Bron Johnson; All of Me: How Do I Know Where Blackness Ends and Neurodivergence Begins? – Morénike Giwa-Onaiwu; Using Intersecting Identities and Radically Accepting Communities to Increase Coping Skills – Samantha Hack; Autistic Navigation of Chronic Illness, Mental Illness, and Healthcare – Amythest Schaber; The Spectrum and Depression: Four Stories – M. Kelter; Cyborgs, Luddites, and To-Do List Apps: An Autistic Use of Technology – A.C. Buchanan.

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Listen to the tone of my body language…

Film, Portayal, Social communication
Nicole Kidman discussing her role in the film “Destroyer”

A lot of the video I have worked with looks at the large-scale motion of crowds and traffic, with a focus on how social infrastructure can invisibly serve our urges to wander, or visibly obstruct and contain those urges – sometimes with increased conflict as different wanderers are constrained into competition within narrow spaces. Amongst that video, however, some have included people talking, expressing themselves through their words, their gestures, and through the tone of their overall body language.

Body language and tone are very hard for me to interpret, a common trait among autistic people. We see that body language is present, and perhaps its intensity, but it is like sounds in a foreign language. Misinterpretation is frequent (there is proof in the dents in my shins from being kicked under the table), especially when the spoken and the body language are sending different messages.

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Interview article by Marie Walshe in Lacunae, July 2018

Portayal, Sensory issues, Social communication
Lacunae, the APPI International Journal for Lacanian Psychoanalysis, Issue 16 (July 2018) is specially-themed to autism with a translated article by the brilliant Jean-Claude Maleval, “Mottron’s Autist is not Kanner’s”; an interview with Irish autist Dr. Stuart Neilson conducted by Marie Walshe; Rob Weatherill on fatherhood “Being (Not) in the World Without a Father.”
Editor Eve Watson writes “Highlighting the importance of first-hand accounts in approaching the subjective experience of the being on the autistic spectrum an interview with Irish autist, Dr. Stuart Neilson, provides a fascinating first-hand account of the lived experience of Asperger’s Syndrome. The interview was conducted by Marie Walshe, on behalf of Lacunae and shows there is much to discern from Dr.  Neilson’s personal narrative of living with Asperger’s.”

Autism Documentary – Living positively in “The Moon is an Orange Triangle”

Media, Portayal, Sensory issues, Social communication

Last year I had the privilege of being asked to take part in the last of a three-series documentary on living positively with autism – in childhood, in teenage and now in adulthood. The documentarian, Alison Toomey, has a wonderfully light touch that creates the space for her subjects to speak their own words and, in effect, direct the outcome to express their priorities. Links to all episodes are here.

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