I am more proud of this collection of work than of anything else I have done. This is a good time for me to reflect on my needs as an autistic (city-dwelling) adult, and on the amazing support I have had over the past (more than) decade from Aspect, the support service for autistic adults in Cork & Kerry.
Cork City centre is compact, varied and contains all the amenities for most people’s everyday needs. The City centre shops and facilities are within 15 minutes walk (green) for 22,530 residents, within 30 minutes walk (cyan) for 53,481 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,200 residents.
These residents are, equally, the consumer base of many of the businesses within Cork City centre, and the audience for appeals on footfall and invigorating activity in Cork.
I use the boundaries of Cork City, as defined at the time of the 2016 census, to count and plot how many can (and do!) walk, cycle, use public transport and live without cars or private motorised vehicles in Cork City. Links to the full CSO Small Area Population Statistics (SAPS) are included (and repeated in full at the end), as well as some excellent sources of information about the City, including the Pedestrian Cork Survey 2020.
Rosie Weldon received an autism diagnosis at 25, by no means either the beginning or end of her journey of self-discovery and world shaping. In her memoir, “My Autistic Fight Song”, she presents a raw, intense and very positive view into family, education, love and work from her autistic perspective.
Ian Dury wryly noted that anxiety crippled (his word) him more than polio and in his wonderful song “Crippled with Nerves”, anxiety is both disabling and a potential loss of social opportunity – but it’s a pain worth enduring for a sufficiently rewarding end result (marriage and two children, in his case). I’d like to emphasise the role of choice and (social) reward.
Urban space is changing fast and despite the potential to increase urban space through growth, technology and social progress, the reality is often increasing exclusion and isolation. My own experience is one of a city increasingly paved over, squared off, noisier and lacking in calm spaces. Traffic, busy people and blank commercial facades have replaced more welcoming districts, because accessibility and family-friendly features are not a developer priority – they maximise borrowings, ramp up local property prices, take the increase in plot value and move on. Sustainable community is not a short-term money-spinner.
My perspective is very much the social exclusion and sensory impact of unsympathetic development. This post includes some images of Cork City and data maps of changing city demographics, at the level of the 74 electoral districts, to outline how the city is changing.
This is the full text of my chapter on sensory issues in public spaces, in the anthology “Knowing Why: Adult-Diagnosed Autistic People on Life and Autism”. The anthology presents contributions from a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.
The book contents are: Emerging From Burnout – Erin Human; Being the Dictionary: On Passions, Diagnosis, and Integration – A.J. Odasso; Sensory Issues and Social Inclusion – Stuart Neilson; Working While Autistic – Kelly Bron Johnson; All of Me: How Do I Know Where Blackness Ends and Neurodivergence Begins? – Morénike Giwa-Onaiwu; Using Intersecting Identities and Radically Accepting Communities to Increase Coping Skills – Samantha Hack; Autistic Navigation of Chronic Illness, Mental Illness, and Healthcare – Amythest Schaber; The Spectrum and Depression: Four Stories – M. Kelter; Cyborgs, Luddites, and To-Do List Apps: An Autistic Use of Technology – A.C. Buchanan.
A lot of the video I have worked with looks at the large-scale motion of crowds and traffic, with a focus on how social infrastructure can invisibly serve our urges to wander, or visibly obstruct and contain those urges – sometimes with increased conflict as different wanderers are constrained into competition within narrow spaces. Amongst that video, however, some have included people talking, expressing themselves through their words, their gestures, and through the tone of their overall body language.
Body language and tone are very hard for me to interpret, a common trait among autistic people. We see that body language is present, and perhaps its intensity, but it is like sounds in a foreign language. Misinterpretation is frequent (there is proof in the dents in my shins from being kicked under the table), especially when the spoken and the body language are sending different messages.
Lacunae, the APPI International Journal for Lacanian Psychoanalysis, Issue 16 (July 2018) is specially-themed to autism with a translated article by the brilliant Jean-Claude Maleval, “Mottron’s Autist is not Kanner’s”; an interview with Irish autist Dr. Stuart Neilson conducted by Marie Walshe; Rob Weatherill on fatherhood “Being (Not) in the World Without a Father.”
Editor Eve Watson writes “Highlighting the importance of first-hand accounts in approaching the subjective experience of the being on the autistic spectrum an interview with Irish autist, Dr. Stuart Neilson, provides a fascinating first-hand account of the lived experience of Asperger’s Syndrome. The interview was conducted by Marie Walshe, on behalf of Lacunae and shows there is much to discern from Dr. Neilson’s personal narrative of living with Asperger’s.”
Last year I had the privilege of being asked to take part in the last of a three-series documentary on living positively with autism – in childhood, in teenage and now in adulthood. The documentarian, Alison Toomey, has a wonderfully light touch that creates the space for her subjects to speak their own words and, in effect, direct the outcome to express their priorities. Links to all episodes are here.
I like making photographs and find photography incredibly helpful – as a record of holidays and places, of the gas reading, or just to note the location of sockets on the back of the television; as a shield to deflect attention in busy places or to reduce anxiety in fearful situations (like zip-lining); or my favourite, photographing insects and minute things. The world is a fractal, with detail at all scales from continents to sand grains, so moving far away (in an aircraft) or zooming in close can be very interesting. No matter how far or close, the image always has details.
This is a weed leaf that blew off an extension roof. Taking a photograph at high magnification can be difficult because the depth of field (the region in focus) is very small, and only the front edge and water drop are in focus here. If you are wondering, this leaf is about 6mm (1/4″) wide.
Taking a sequence of images (twelve, in this case) focused progressively from the front to the back of the leaf saves a collection of “slices” of in-focus leaf at different distances. This allows me to make a composite image with the whole leaf in focus. (I used align_image_stack and enfuse to align all the images and then combine them into one focused composite).
This is the leaf on my forefinger, which is about 18mm across. You might notice a dark smudge on the stem, just below the front edge of the leaf. She is an early visitor.Zooming a bit closer reveals her to be an aphid of some form. She is about 0.8 mm long. I had no idea that she was there when I picked up the leaves, and only noticed after I had taken the first series of photographs.
The world is full of incredible detail like this, which we miss most of the time in favour of objects on our own scale and objects that have social connections. My family often complain, especially on holiday, when I get distracted by the beautiful details at ground level.