Category Archives: Disablement

Car-free Cork in 15 minutes, walking and cycling

Cork City centre is within 15 minutes walk (green) for 22,000 residents, within 30 minutes walk (cyan) for 53,000 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,000 residents.

Cork City centre is compact, varied and contains all the amenities for most people’s everyday needs. The City centre shops and facilities are within 15 minutes walk (green) for 22,530 residents, within 30 minutes walk (cyan) for 53,481 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,200 residents.

These residents are, equally, the consumer base of many of the businesses within Cork City centre, and the audience for appeals on footfall and invigorating activity in Cork.

I use the boundaries of Cork City, as defined at the time of the 2016 census, to count and plot how many can (and do!) walk, cycle, use public transport and live without cars or private motorised vehicles in Cork City. Links to the full CSO Small Area Population Statistics (SAPS) are included (and repeated in full at the end), as well as some excellent sources of information about the City, including the Pedestrian Cork Survey 2020.

(See also “Conserving accesible urban space” for a discussion on accessibility and sensory overload in Cork City).

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Lacunae: Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome

Last year I was interviewed by Marie Walsh for a special issue of the journal Lacunae, the International Journal for Lacanian Psychoanalysis. Issue 16 of Lacunae had a special theme of autism reflected in Jean-Claude Maleval and Michel Grollier “Mottron’s Happy Autist is Not Kanner’s,” and Rob Weatherill, in “Being (Not) in the World Without a Father” in addition to this interview. (You can read the full table of contents or buy a copy from Karnac Books).

The full text of the interview is reproduced below with permission. Marie Walsh did an excellent job of shepherding my rambling thoughts into a cohesive narrative.

You can cite this interview as: Walsh, Marie. (2018). “Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome”. Lacunae, 16, 54-63.

Continue reading Lacunae: Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome

Conserving accesible urban space

Urban space is changing fast and despite the potential to increase urban space through growth, technology and social progress, the reality is often increasing exclusion and isolation. My own experience is one of a city increasingly paved over, squared off, noisier and lacking in calm spaces. Traffic, busy people and blank commercial facades have replaced more welcoming districts, because accessibility and family-friendly features are not a developer priority – they maximise borrowings, ramp up local property prices, take the increase in plot value and move on. Sustainable community is not a short-term money-spinner.

My perspective is very much the social exclusion and sensory impact of unsympathetic development. This post includes some images of Cork City and data maps of changing city demographics, at the level of the 74 electoral districts, to outline how the city is changing.

Further reading:

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Sensory Issues and Social Inclusion

This is the full text of my chapter on sensory issues in public spaces, in the anthology “Knowing Why: Adult-Diagnosed Autistic People on Life and Autism”. The anthology presents contributions from a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.

You can purchase the book (and support the work of the Autistic Self Advocacy Network, ASAN) from Amazon, Barnes & Noble or Books-A-Million.

The book contents are: Emerging From Burnout – Erin Human; Being the Dictionary: On Passions, Diagnosis, and Integration – A.J. Odasso; Sensory Issues and Social Inclusion – Stuart Neilson; Working While Autistic – Kelly Bron Johnson; All of Me: How Do I Know Where Blackness Ends and Neurodivergence Begins? – Morénike Giwa-Onaiwu; Using Intersecting Identities and Radically Accepting Communities to Increase Coping Skills – Samantha Hack; Autistic Navigation of Chronic Illness, Mental Illness, and Healthcare – Amythest Schaber; The Spectrum and Depression: Four Stories – M. Kelter; Cyborgs, Luddites, and To-Do List Apps: An Autistic Use of Technology – A.C. Buchanan.

Continue reading Sensory Issues and Social Inclusion

New Book: “Knowing Why – Adult-Diagnosed Autistic People on Life and Autism”

I have a chapter in a new anthology of experiences written by a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.

The anthology is available in paperback (£19.05) or as a Kindle eBook (£9.99) from Amazon or from Barnes & Noble.

Continue reading New Book: “Knowing Why – Adult-Diagnosed Autistic People on Life and Autism”

Exhibition on “The Portrayal of Autism”

Autism by Irish province
A map of the most frequent words in news articles mentioning autism, by Irish province – different place, different autism?

In a few months (the whole of February 2019) I will be exhibiting data visualization, digital images and photographs related to the portrayal of autism in St Peter’s Gallery on North Main Street in Cork. The exhibition will be accompanied by presentations and a panel discussion open to the public. These include:

“Working with autistic people to make art”, “Special needs education and the formation of personal identity”, “An Autism-Friendly space initiative”, and “How disability and difference find spatial signatures”
and
A panel discussion featuring all speakers, open to questions

Much of the content is based on ideas and images that I have previously posted here, so you will have a good idea of what to expect if you look through my blog history. Continue reading Exhibition on “The Portrayal of Autism”

Use your vote in the referendum on 25 May

On Friday 25 May Irish voters will be asked in a referendum whether they wish to remove the Eighth Amendment from the Constitution and replace it with the words “Provision may be made by law for the regulation of termination of pregnancies”. The full text of the proposed Dáil legislation has been published in advance and is available at the link near the end of this Irish Examiner article https://www.irishexaminer.com/breakingnews/ireland/watch-government-publishes-bill-containing-exact-proposed-wording-of-abortion-referendum-831699.html

In order to vote, you must ensure that you are on the electoral register before 8 May, which you can check at https://www.checktheregister.ie/

Fertility, sexuality and pregnancy are issues that are far more likely to affect autistic, disabled or mentally ill people. I am in favour of replacing the Eighth Amendment with sound legislation. It is really important for all affected groups exercise their own choices and vote, whichever way, for the outcome to reflect their views.

Continue reading Use your vote in the referendum on 25 May

Autism and identity in the DSM

The DSM (autism section) alluvial plotThe Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is a definitive document for many professionals assessing, diagnosing and providing services related to autism. The DSM has been slow to recognise of Hans Asperger’s work (see also Historical context of Asperger’s first (1938) autism paper), of Asperger syndrome and Lorna Wing’s contribution to the wider autism/autistic spectrum .

Professionals inform parents, carers, teachers and others about the meaning of ‘autism’ and are often held in awe. The identity of autistic people has been impacted by the ebb and flow of ideas and consensus in the DSM.

This is a description of some images I have been creating of the definition of autism in the full text of every version of the DSM, from 1952 to the present.

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Autism and dual diagnosis in a psychiatric dystopia

"I ain’t broke ... and you bastards ain’t never gonna break me." (Bitch Planet #3, by writer Kelly Sue DeConnick and artist Valentine De Landro, 2015).
“I ain’t broke … and you bastards ain’t never gonna break me.” (Bitch Planet #3, by writer Kelly Sue DeConnick and artist Valentine De Landro, 2015).

As someone with both an autism spectrum diagnosis and a history of mental illness, I fall into that intersectionality politely called ’dual diagnosis’, although it often feels more like ’falling between two stools’ than eligibility for duplicated supports. I am lucky to have won the postcode lottery and live in Cork City, the base of the only HSE-funded community support service in the country for adults with Asperger syndrome, where I get excellent social and other supports from Aspect, part of the Cork Association for Autism. I am unlucky to live in a country that otherwise has no services whatsoever for autistic adults (post 18 years) and where ’dual diagnosis’ means being shuffled between mental health services (as and when mental health is impacted) and social or disability support services. About 70-80% of people with Asperger syndrome also experience depression, anxiety and emotional difficulties. Suicidal thoughts are common and often difficult to identify. I want to share a particularly difficult recent encounter with psychiatric care that others in a similar position may find helpful to talk about.

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Asperger syndrome film discussion group

AutismFeature Films
Feature films with a leading autistic character

In each of the last two years I have been involved in a film discussion group run by and for people with an Asperger syndrome or autism spectrum diagnosis. The group has fluctuated in membership between four and twelve people, with a core of continuous members. We have watched predominantly feature films and documentaries in which at least one principal character is explicitly identified as ’autistic’ within the film, in publicity material or according to audiences. Our group has displayed a phenomenal knowledge of cinema, television and relevant links to other art forms such as fiction, graphic novels and computer games with the same characters. The film discussion group has been a positive experience with a good reception.

The enthusiasm of the group and the incredible depth and breadth of knowledge about cinema and media shows a huge wealth of systematic learning while viewing, perhaps at a level that family and others are not aware. Reading ’comics’, playing console games and watching ’kid’s TV’ can have undiscovered depths of meaning for people who have limited opportunities to discuss their particular interests.

I hope this blog post might encourage you to start discussion groups of film, fiction or whatever areas interest you, and I would be pleased offer advice or attend further sessions. I would be especially interested in any public screenings of autism-themed films — the Cork Film Festival screening of “Life, Animated” (http://corkfilmfest.org/events/life-animated/) and panel discussion (which I was thrilled to be part of) was packed, and all the feedback that reached me was incredibly positive.

Some initial resources that might help are a Guardian article on “How to start a film club” (https://www.theguardian.com/lifeandstyle/2014/sep/12/how-to-start-a-film-club) and a BBC Radio 4 feature on “Running a bookclub” (http://www.bbc.co.uk/radio4/features/book-club/running-a-club/). You can find a starter list of autism-themed films (http://gallery.stuartneilson.com/index.php?album=Autism-films/Autism-feature-films) and fictional books (http://gallery.stuartneilson.com/index.php?album=ASD-fiction) on my website.

(Thanks especially to those who provided the resources, planning skills and personal support to get our group running, regularly, on time and in a comfortable space).

Continue reading Asperger syndrome film discussion group