Category Archives: Disablement

Picturing Inclusivity in Public Spaces

Lockdown Birds, 2020. A video composite from my window at home of birds flying over Cork City.

All of us have to use public spaces to access education, work, health care, sport and social opportunities. I often feel public places are designed and run in ways that – hopefully unintentionally – are difficult for me to use, yet most people navigate with ease. When I am in the middle of crowded places, I often feel like everyone is rushing in response to an alarm that I have not seen or heard, and I am the only person going the wrong way.
I often feel overloaded by the sensory experience of streets or shops, and not just by the uncontrolled noise, motion and odour of public space, but by the boundless possibilities of all the things I know from past experience might possibly happen, and all the things my over-active imagination conjures up as a possibility that could intrude on the present. Public space is busy, complex, and unpredictable. As a pedestrian in a busy city, I often feel a sense of exclusion, which I had always attributed to my own anxiety and to me being autistic – and not to the design of public space. My pictures attempt to capture the distribution of motion and calm in a public realm, to share my sense of safety when I find somewhere out of the flow, or how to safely join the flow of people and traffic. I make pictures of public places that try to identify how I feel, and what makes a place hostile and excluding, or calming and inclusive.

(This post is derived from a presentation I gave at the AsIAmSame Chance” Conference. I repeated the presentation to the Irish Planning Institute “Building for Everyone – Universal Design and Inclusive Public Spaces” workshop in February 2023, which was mentioned at the Joint Committee on Autism, 16 May 2023)

Continue reading Picturing Inclusivity in Public Spaces

Venice Architectural Biennale, 2021

Pandemic Birds – a video composite of jackdaws flying over Cork City at sunrise, from my window at home during lockdown.

Some of my work on perceptions of public space features in the exhibition “Autistic Imaginaries of Architectural Space: The World from an Autistic Lens” curated by architect Magda Mostafa, who co-developed the Autism Friendly University Design Guide with Dublin City University.

You can visit a static gallery of my own contribution or visit a virtual tour of “Time Space Existence” at the Palazzon Bembo, created by the European Centre for Culture.

I am more proud of this collection of work than of anything else I have done. This is a good time for me to reflect on my needs as an autistic (city-dwelling) adult, and on the amazing support I have had over the past (more than) decade from Aspect, the support service for autistic adults in Cork & Kerry.

Visit here: stuartneilson.com/Exhibitions/Venice%202021/

Continue reading Venice Architectural Biennale, 2021

Mapping shared public space using motion intensity

The junction of Grand Parade and Washington Street, with bollards and lamp-posts obstructing pedestrian desire-lines, which are fluid and can not be contained by the designed crossing layout.

As part of another project, I started created “heatmaps” of the motion intensity into video recordings of everyday events. These are not images of literal heat, but assessments of the amount of visual change across the video field, converted into a coloured scale, where “heat” (from blue to red) is a readily-understood representation. My main motivation was to assess where and to identify what attracts attention, or distracts from attention, and to express how the environment feels from an autistic, attention-deficit (ADD/ADHD) perspective. These heatmaps of the amount and location of visual change became quite informative maps of how people use space, and how design constrains people from using space effectively.

(A minimal, fully-functional code sample is appended to the end of this post. You will need Python, and the OpenCV and Numpy libraries installed.)

Continue reading Mapping shared public space using motion intensity

Car-free Cork in 15 minutes, walking and cycling

Cork City centre is within 15 minutes walk (green) for 22,000 residents, within 30 minutes walk (cyan) for 53,000 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,000 residents.

Cork City centre is compact, varied and contains all the amenities for most people’s everyday needs. The City centre shops and facilities are within 15 minutes walk (green) for 22,530 residents, within 30 minutes walk (cyan) for 53,481 residents and 45 minutes walk, or 20 minutes cycling (pink) for 106,200 residents.

These residents are, equally, the consumer base of many of the businesses within Cork City centre, and the audience for appeals on footfall and invigorating activity in Cork.

I use the boundaries of Cork City, as defined at the time of the 2016 census, to count and plot how many can (and do!) walk, cycle, use public transport and live without cars or private motorised vehicles in Cork City. Links to the full CSO Small Area Population Statistics (SAPS) are included (and repeated in full at the end), as well as some excellent sources of information about the City, including the Pedestrian Cork Survey 2020.

(See also “Conserving accesible urban space” for a discussion on accessibility and sensory overload in Cork City).

Continue reading Car-free Cork in 15 minutes, walking and cycling

Lacunae: Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome

Last year I was interviewed by Marie Walsh for a special issue of the journal Lacunae, the International Journal for Lacanian Psychoanalysis. Issue 16 of Lacunae had a special theme of autism reflected in Jean-Claude Maleval and Michel Grollier “Mottron’s Happy Autist is Not Kanner’s,” and Rob Weatherill, in “Being (Not) in the World Without a Father” in addition to this interview. (You can read the full table of contents or buy a copy from Karnac Books).

The full text of the interview is reproduced below with permission. Marie Walsh did an excellent job of shepherding my rambling thoughts into a cohesive narrative.

You can cite this interview as: Walsh, Marie. (2018). “Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome”. Lacunae, 16, 54-63.

Continue reading Lacunae: Interview with Stuart Neilson, on the Lived Experience of Asperger’s Syndrome

Conserving accesible urban space

Urban space is changing fast and despite the potential to increase urban space through growth, technology and social progress, the reality is often increasing exclusion and isolation. My own experience is one of a city increasingly paved over, squared off, noisier and lacking in calm spaces. Traffic, busy people and blank commercial facades have replaced more welcoming districts, because accessibility and family-friendly features are not a developer priority – they maximise borrowings, ramp up local property prices, take the increase in plot value and move on. Sustainable community is not a short-term money-spinner.

My perspective is very much the social exclusion and sensory impact of unsympathetic development. This post includes some images of Cork City and data maps of changing city demographics, at the level of the 74 electoral districts, to outline how the city is changing.

Further reading:

Continue reading Conserving accesible urban space

Sensory Issues and Social Inclusion

This is the full text of my chapter on sensory issues in public spaces, in the anthology “Knowing Why: Adult-Diagnosed Autistic People on Life and Autism”. The anthology presents contributions from a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.

You can purchase the book (and support the work of the Autistic Self Advocacy Network, ASAN) from Amazon, Barnes & Noble or Books-A-Million.

The book contents are: Emerging From Burnout – Erin Human; Being the Dictionary: On Passions, Diagnosis, and Integration – A.J. Odasso; Sensory Issues and Social Inclusion – Stuart Neilson; Working While Autistic – Kelly Bron Johnson; All of Me: How Do I Know Where Blackness Ends and Neurodivergence Begins? – Morénike Giwa-Onaiwu; Using Intersecting Identities and Radically Accepting Communities to Increase Coping Skills – Samantha Hack; Autistic Navigation of Chronic Illness, Mental Illness, and Healthcare – Amythest Schaber; The Spectrum and Depression: Four Stories – M. Kelter; Cyborgs, Luddites, and To-Do List Apps: An Autistic Use of Technology – A.C. Buchanan.

Continue reading Sensory Issues and Social Inclusion

New Book: “Knowing Why – Adult-Diagnosed Autistic People on Life and Autism”

I have a chapter in a new anthology of experiences written by a diverse group of people who were diagnosed autistic in adulthood. The book explores what it is like to feel so different, in so many ways, from other people without having known why; and then discovering that autism is not merely an explanation, but also an experience and identity shared by many others. Learning that your differences are autistic, even late in adulthood, is a positive event and useful knowledge for these writers.

The anthology is available in paperback (£19.05) or as a Kindle eBook (£9.99) from Amazon or from Barnes & Noble.

Continue reading New Book: “Knowing Why – Adult-Diagnosed Autistic People on Life and Autism”

Exhibition on “The Portrayal of Autism”

Autism by Irish province
A map of the most frequent words in news articles mentioning autism, by Irish province – different place, different autism?

In a few months (the whole of February 2019) I will be exhibiting data visualization, digital images and photographs related to the portrayal of autism in St Peter’s Gallery on North Main Street in Cork. The exhibition will be accompanied by presentations and a panel discussion open to the public. These include:

“Working with autistic people to make art”, “Special needs education and the formation of personal identity”, “An Autism-Friendly space initiative”, and “How disability and difference find spatial signatures”
and
A panel discussion featuring all speakers, open to questions

Much of the content is based on ideas and images that I have previously posted here, so you will have a good idea of what to expect if you look through my blog history. Continue reading Exhibition on “The Portrayal of Autism”

Use your vote in the referendum on 25 May

On Friday 25 May Irish voters will be asked in a referendum whether they wish to remove the Eighth Amendment from the Constitution and replace it with the words “Provision may be made by law for the regulation of termination of pregnancies”. The full text of the proposed Dáil legislation has been published in advance and is available at the link near the end of this Irish Examiner article https://www.irishexaminer.com/breakingnews/ireland/watch-government-publishes-bill-containing-exact-proposed-wording-of-abortion-referendum-831699.html

In order to vote, you must ensure that you are on the electoral register before 8 May, which you can check at https://www.checktheregister.ie/

Fertility, sexuality and pregnancy are issues that are far more likely to affect autistic, disabled or mentally ill people. I am in favour of replacing the Eighth Amendment with sound legislation. It is really important for all affected groups exercise their own choices and vote, whichever way, for the outcome to reflect their views.

Continue reading Use your vote in the referendum on 25 May