These are ten books I have read recently that have a common theme (some looser than others) of disempowerment and psychiatric states. People who have diagnosed psychiatric illness, or are perceived ’differently’, are less likely to be believed or to be treated with respect. These books present the feeling of disempowerment from a first-person perspective, with varying degrees of success. They also present some of the negative consequences (for the person and community) of disbelieving and disrespecting the ‘Other’. Some of the characters receive inadequate medical care because their providers are too hurried or too disinterested to follow through the characters’ expressed needs. The police are not inclined to assist or believe ‘unreliable’ characters, at a cost to their own investigations.
“In a Different Key: The Story of Autism” by John Donvan and Caren Zucker is a lengthy and panoramic history of autism. I can recommend it for its sheer depth of research and quality of referencing, with the proviso that it presents a history of parents of autistic children. The degree to which autism is portrayed as a tragedy and the loss of a normal child will be unpalatable to many people who have autism themselves.
’Single-sourcing’ is a method of content management common in technical editing, and something I have used in various forms for years to manage my thoughts and notes, and (ultimately) any presentations or publications that come from them. The aspiration of single-sourcing is to have one document source which can be transformed (without further editing) into multiple output formats.
This is a brief post to note a collection of short reviews about non-fiction books about autism, relevant mostly to adolescents or adults who have a diagnosis. They include autobiography from Luke Jackson, Temple Grandin and Liane Holliday Willey; historical work from Uta Frith, Adam Feinstein and Steve Silberman; and practical intervention texts from Tony Attwood, Mohammed Ghaziuddin and Florica Stone.
This is an important book and, above all, a book of the now — some commentators have talked about the creation of a “pre-Neurotribes” and a “post-Neurotribes” public understanding of autism, which is probably correct. The amalgamation of Asperger syndrome into autism spectrum disorder within the DSM-5 in 2013 rewrote the definition of autism and Steve Silberman delineates the new landscape of the autistic spectrum and its population.
As a child, I lived and went to early school in Pakistan, and then lived there again towards the end of secondary school, from 1978 to 1980. One part of the examination in ‘O’ Level English was to write an extended essay on a topic of your own choice. My choice was the painted lorries of Pakistan, a fantastic mixture of art, craft, technology, religion and emotional yearning.
I spent the summer of 2015 reading over thirty of the many, many fiction titles that relate, in some way, to autism. My personal reviews of individual titles will follow in a sorted gallery, where I can continually add and update the collection. Each review includes a link to a longer review in a newspaper or blog and a link to the author’s site, sorted by author surname. These are widely varied titles, from children’s to adults’ fiction, from romance to vampires, and from thrillers to science fiction. Most of these books state or strongly imply that a central character has an autism spectrum diagnosis, or it has been stated in publicity material or related films. The autistic character is not always the lead, and is not always painted positively – both negative and positive characters and events can be equally meaningful representations of most people’s real lives.
Fictional films and books about autism
What do people write about when they are writing about “autism”?
Autism is the disease of our age. Susan Sontag introduced “Illness as Metaphor” in 1978, identifying tuberculosis as the disease of the 19th century and cancer as the disease of her own time. HIV and AIDS are the disease of the decade afterwards. Autism is a metaphor for current global concerns – all our fears of Pollution, Viral pandemics, Political aggression, Terrorism, Internet addiction and Natural disasters are encapsulated in ‘autism’ as a metaphor.
People often write “about” autism, using it as a plot device or to add depth to a (usually another) character. Occasionally people write about autism as a lived experience. Only rarely is the lived experience portrayed in film or by actors with autism. Continue reading Autism in fictional and factual film and books
In The Rosie Project (Graeme Simsion, 2012) we are introduced to Don Tillman, a socially inept professor of genetics who appears to have all the pre-requisite impairments for a diagnosis of Asperger syndrome. However, he is not diagnosed during the course of the book, nor following marriage in the follow-up The Rosie Effect (Graeme Simsion, 2014). The possibility of mental illness is mentioned, although “no definitive diagnosis other than depression was ever recorded” (The Rosie Effect). Somewhere, twenty years in Don Tillman’s past, is a largely irrelevant medical file in which the tentative diagnoses of “‘depression, bipolar disorder? OCD?’ and ‘schizophrenia?’” have been suggested, but the best efforts of 1990s psychiatry failed to fit Don Tillman into any simplistic category (The Rosie Project).
Living with Asperger syndrome and autism in Ireland by Stuart Neilson and Diarmuid Heffernan
Launch: Deirdre O’Shaughnessy, editor of the Cork Independent, (who chaired the CAA Autism Forum 2013) will officially launch “Living with Asperger syndrome and autism in Ireland” by Dr Stuart Neilson and Diarmuid Heffernan. Adult Continuing Education (ACE) University College Cork will host the launch at 4.30 pm on Monday 25th November 2013 in the Thomas Davidson room, The Central Library, 57-61 Grand Parade, Cork.
(Facebook Page: https://www.facebook.com/LivingWithASandAutismInIreland)